Heigh Ho, Heigh Ho, To The Panto Sonny Shall Go

Taking a break from my blog was a conscious decision I made for the sake on my own sanity. My family had to be my sole focus, the children, Joe’s health, my own health and what with juggling work on top of it, I didn’t have the time nor energy to write. I had also to consider whether Sonny’s severe distress was something that, in the future, he would be comfortable me sharing so publicly. Sonny was in crisis from September through to June this year. He wasn’t coping in his mainstream school and for many reasons, that I won’t go in to now but those who follow us closely might already know, I was preparing to home educate him.

Read more ›

Please Stop Commenting on my Son’s Weight.

In the last year, Sonny’s physical appearance has changed quite a lot, he has grown tall, so tall! He has lost that dainty little boy look and has grown into a charming young man. Sonny has put on weight. I know. I can see. Yet people continue to comment on my son’s weight. Please stop commenting on my son’s weight. They say it to me like he’s a stranger and no son of mine, hunched towards me, words so whispered they almost make no sound at all. ‘He’s really chunked up hasn’t he!’ ‘He’s got big! He’s put on a lot of weight hasn’t he!’

Read more ›

Mirror Mirror On The Wall. Who’s The Proudest SEN Parent of Them All?

Sonny, I can’t quite fathom just how quickly this year has flown. We are less than two weeks away from the summer holidays. On the other side of summer starts a brand new school year, Year 2 in fact. You really are quite the young man now. Your big brother will be starting Year 4 and possibly the most exciting of all, your baby brother will finally be joining you big boys when he starts in the new Reception class. I envision it now, your wild eyes gleaming at the sight of your baby brother wearing uniform identical to yours and those happy-clappy waving hands when you see him playing in the Reception garden.

Read more ›

My Son Soars When His Learning Environment Suits

Today Sonny and I did something a little different to what we usually do. We enjoyed a little quality time together, just us two. We’ve had a really lovely half term over all and it came at a crucial time for us. It’s amazing how this one in particular changes when you take school out of the equation. He’s enjoyed time at home, going out and about with minimal demands. I can’t wait for the summer holidays!

Read more ›

Riddles and Rain in the Month of May

The walk to school each morning takes us roughly 20 minutes and that’s on a good day. As tiring as the walk can be and no matter how many times I get frustrated with myself for why-oh-why not learning to drive pre children, the long walk in the crisp morning air is good for us. We try to find ways of passing the time and make the walk to school appear quicker.

Read more ›

SPACE Helping Families With Children on the Spectrum

Last week I wrote a piece on why I’ve chosen to fundraise for a local charity called SPACE for this years World Autism Awareness Week. I wanted to take the opportunity to explain a little more about the charity and what makes them so worthy of your donation. Space is a Hertfordshire based charity supporting parent/carers of children and young people on the Autistic Spectrum, with Attention Deficit Hyperactivity Disorder (ADHD) or a related condition. The group has been running since 2007 and became a registered charity in 2017.

Read more ›

Why I’m Fundraising For SPACE Autism Awareness Week 2018

Space is a charity supporting and relieving the needs of families and carers of children and young people diagnosed or under assessment for ASD, ADHD and related conditions but not exclusively.

Read more ›

Growing Pains

With the reality of Sonny turning 6, I feel a monumental shift coming in the dynamics of our family and Autism parenting as I’ve known it to be. A whole new bundle of worries and what if’s.
So why is it that Sonny’s now 6 do I feel apprehensive? I mean we have no upcoming transitional milestones such as his first day of school, first school trip or first sleepover. We’ve accomplished diagnosis. All those milestones have either been and gone or are nowhere close enough for me to start fretting over.

Read more ›

Q&A | Life As A Special Needs Sibling

Riley struggles the most when it comes to having a sibling with special needs. Even though Sonny was only diagnosed with Autism in December, the effects of his disability have been felt throughout our family unit for years. You hear about young carers and a little about what life is like for them but Riley wanted to share with you his thoughts and feelings. He wants you to know what life is like having Sonny for a little brother.

Read more ›

Why I Continue To Share Our Autism Journey

Having a child with special needs is often lonely. The fight for support never ends and it causes exhaustion and illness. I have suffered chronic pain since the beginning of our journey and I believe that is through continuously high stress levels. They say parents of special needs children have the same stress levels as combat veterans. With the support I have received from fellow SEN parents, life has changed so much for the better. If just one parent reads my blog and feels a little more equipped and a little less alone, I’m happy.

Read more ›