SPACE Helping Families With Children on the Spectrum

Last week I wrote a piece on why I’ve chosen to fundraise for a local charity called SPACE for this years World Autism Awareness Week. I wanted to take the opportunity to explain a little more about the charity and what makes them so worthy of your donation. Space is a Hertfordshire based charity supporting parent/carers of children and young people on the Autistic Spectrum, with Attention Deficit Hyperactivity Disorder (ADHD) or a related condition. The group has been running since 2007 and became a registered charity in 2017.

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Why I’m Fundraising For SPACE Autism Awareness Week 2018

Space is a charity supporting and relieving the needs of families and carers of children and young people diagnosed or under assessment for ASD, ADHD and related conditions but not exclusively.

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Growing Pains

With the reality of Sonny turning 6, I feel a monumental shift coming in the dynamics of our family and Autism parenting as I’ve known it to be. A whole new bundle of worries and what if’s.
So why is it that Sonny’s now 6 do I feel apprehensive? I mean we have no upcoming transitional milestones such as his first day of school, first school trip or first sleepover. We’ve accomplished diagnosis. All those milestones have either been and gone or are nowhere close enough for me to start fretting over.

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Q&A | Life As A Special Needs Sibling

Riley struggles the most when it comes to having a sibling with special needs. Even though Sonny was only diagnosed with Autism in December, the effects of his disability have been felt throughout our family unit for years. You hear about young carers and a little about what life is like for them but Riley wanted to share with you his thoughts and feelings. He wants you to know what life is like having Sonny for a little brother.

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Why I Continue To Share Our Autism Journey

Having a child with special needs is often lonely. The fight for support never ends and it causes exhaustion and illness. I have suffered chronic pain since the beginning of our journey and I believe that is through continuously high stress levels. They say parents of special needs children have the same stress levels as combat veterans. With the support I have received from fellow SEN parents, life has changed so much for the better. If just one parent reads my blog and feels a little more equipped and a little less alone, I’m happy.

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One Month Post Autism Diagnosis

13th December 2017 was a perfect day for diagnosis. That day drew a marker in the sand. Our two year struggle understood and validated by professionals. No one can take that away from us, we fought hard to get here and finally we can move forward. I gathered up all the stress and anxiety from that time, all the tears and tantrums and packaged them neatly in a little box. I sealed it shut, labelled it ‘Chapter 1’ and put it away with all the other things that belonged in 2017.

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The Wind and The Sun

Sonny refused to eat his breakfast. He was reluctant to put on his shoes and at no cost was he going to wear his coat. It was incredibly windy outside and on our walk to school I told him the story of the wind and the sun. If your not familiar with it, it’s one of my favourite Aesop’ s fables. The wind and the sun have a competition to see who can get the little boy to take off his coat. Sonny loved it and he put on his coat and clung to it tighter the harder the wind blew.

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A Perfect Day For Diagnosis

This week, after a nearly two year wait, we received Sonny’s official Diagnosis of Autism Spectrum Disorder. Two years is a long time to tread water and I’m so relieved it’s finally over.
I needed to have it confirmed what I knew in my heart was true. I needed someone to acknowledge our struggles and tell me this is why. I needed to hear “it’s nothing you’ve done wrong.” I needed that proof and confirmation to be able to tell all those who judge us on face value because ‘Autism doesn’t have a look.’ Autism is a hidden disability.

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Young, SEN and Short Term School Exclusions

There are many things I thought I would never experience as a parent. A long time ago I was guilty of being that ‘judgy’ parent. I would be the lady silently assuming that your child, the one kicking and screaming in the supermarket was plain and simply spoilt. I would see children lashing out and screaming in the faces of their parents and look on in horror thinking ‘my child would NEVER do that.’
‘I would never be THAT parent’

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Treading Water | 18 Months Awaiting Autism Diagnosis

Picture the scene. You’re stuck in the middle of the ocean, no boat and no oars. There’s nothing around you to hold on to, there’s no one to guide you and there’s nothing in the distance signposting help nearby.

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