Growing Pains

With the reality of Sonny turning 6, I feel a monumental shift coming in the dynamics of our family and Autism parenting as I’ve known it to be. A whole new bundle of worries and what if’s.
So why is it that Sonny’s now 6 do I feel apprehensive? I mean we have no upcoming transitional milestones such as his first day of school, first school trip or first sleepover. We’ve accomplished diagnosis. All those milestones have either been and gone or are nowhere close enough for me to start fretting over.

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One Month Post Autism Diagnosis

13th December 2017 was a perfect day for diagnosis. That day drew a marker in the sand. Our two year struggle understood and validated by professionals. No one can take that away from us, we fought hard to get here and finally we can move forward. I gathered up all the stress and anxiety from that time, all the tears and tantrums and packaged them neatly in a little box. I sealed it shut, labelled it ‘Chapter 1’ and put it away with all the other things that belonged in 2017.

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The Wind and The Sun

Sonny refused to eat his breakfast. He was reluctant to put on his shoes and at no cost was he going to wear his coat. It was incredibly windy outside and on our walk to school I told him the story of the wind and the sun. If your not familiar with it, it’s one of my favourite Aesop’ s fables. The wind and the sun have a competition to see who can get the little boy to take off his coat. Sonny loved it and he put on his coat and clung to it tighter the harder the wind blew.

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A Perfect Day For Diagnosis

This week, after a nearly two year wait, we received Sonny’s official Diagnosis of Autism Spectrum Disorder. Two years is a long time to tread water and I’m so relieved it’s finally over.
I needed to have it confirmed what I knew in my heart was true. I needed someone to acknowledge our struggles and tell me this is why. I needed to hear “it’s nothing you’ve done wrong.” I needed that proof and confirmation to be able to tell all those who judge us on face value because ‘Autism doesn’t have a look.’ Autism is a hidden disability.

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Treading Water | 18 Months Awaiting Autism Diagnosis

Picture the scene. You’re stuck in the middle of the ocean, no boat and no oars. There’s nothing around you to hold on to, there’s no one to guide you and there’s nothing in the distance signposting help nearby.

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Sonny’s First School Trip

Sonny.
Today you are going on your first ever school trip. You’re off to visit a farm with your 1:1 for the day Mrs H and all your friends at school. You’ve been excited about it for weeks now, asking me every morning if it’s Wednesday yet… if it’s ‘the Wednesday yet. You’ve been reciting the days of the weeks using your fingers in an attempt to work out just how many more days you have left to wait.
The time has finally come, it’s here and you’re off on a coach with the whole of Reception. Are you feeling nervous?

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I Love You Today Because…

I love you today because one, two, three, four, five years have passed since I gave birth to you. Five little but long years ago, I held you in my arms for the very first time. And since then I have continued to hold you, guide you and protect you from the world that surrounds you. The world that overwhelms you so.

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