Heigh Ho, Heigh Ho, To The Panto Sonny Shall Go

Taking a break from my blog was a conscious decision I made for the sake on my own sanity. My family had to be my sole focus, the children, Joe’s health, my own health and what with juggling work on top of it, I didn’t have the time nor energy to write. I had also to consider whether Sonny’s severe distress was something that, in the future, he would be comfortable me sharing so publicly. Sonny was in crisis from September through to June this year. He wasn’t coping in his mainstream school and for many reasons, that I won’t go in to now but those who follow us closely might already know, I was preparing to home educate him.

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Please Stop Commenting on my Son’s Weight.

In the last year, Sonny’s physical appearance has changed quite a lot, he has grown tall, so tall! He has lost that dainty little boy look and has grown into a charming young man. Sonny has put on weight. I know. I can see. Yet people continue to comment on my son’s weight. Please stop commenting on my son’s weight. They say it to me like he’s a stranger and no son of mine, hunched towards me, words so whispered they almost make no sound at all. ‘He’s really chunked up hasn’t he!’ ‘He’s got big! He’s put on a lot of weight hasn’t he!’

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Mirror Mirror On The Wall. Who’s The Proudest SEN Parent of Them All?

Sonny, I can’t quite fathom just how quickly this year has flown. We are less than two weeks away from the summer holidays. On the other side of summer starts a brand new school year, Year 2 in fact. You really are quite the young man now. Your big brother will be starting Year 4 and possibly the most exciting of all, your baby brother will finally be joining you big boys when he starts in the new Reception class. I envision it now, your wild eyes gleaming at the sight of your baby brother wearing uniform identical to yours and those happy-clappy waving hands when you see him playing in the Reception garden.

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Growing Pains

With the reality of Sonny turning 6, I feel a monumental shift coming in the dynamics of our family and Autism parenting as I’ve known it to be. A whole new bundle of worries and what if’s.
So why is it that Sonny’s now 6 do I feel apprehensive? I mean we have no upcoming transitional milestones such as his first day of school, first school trip or first sleepover. We’ve accomplished diagnosis. All those milestones have either been and gone or are nowhere close enough for me to start fretting over.

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A Perfect Day For Diagnosis

This week, after a nearly two year wait, we received Sonny’s official Diagnosis of Autism Spectrum Disorder. Two years is a long time to tread water and I’m so relieved it’s finally over.
I needed to have it confirmed what I knew in my heart was true. I needed someone to acknowledge our struggles and tell me this is why. I needed to hear “it’s nothing you’ve done wrong.” I needed that proof and confirmation to be able to tell all those who judge us on face value because ‘Autism doesn’t have a look.’ Autism is a hidden disability.

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Go Team Green

Not too long after that incident, I sat with the Head Teacher, SENCO and Class Teacher for a good length of time. We discussed his behaviour plan in great depth, what was working well and what wasn’t working so well. We hashed over what we could do to make things better and the outcome was pretty good.

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The Post School Meltdown

On the last day of term, I felt such relief! Finally, we had so much to look forward to. I was excited for the lazy mornings, leisurely afternoons and chilled evenings watching movies, snuggled up together on the sofa. Quality family time. However, Sonny finished reception like a compressed spring. The problem you face with a compressed spring is what happens when you finally decide let it go.

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Sonny’s First School Trip

Sonny.
Today you are going on your first ever school trip. You’re off to visit a farm with your 1:1 for the day Mrs H and all your friends at school. You’ve been excited about it for weeks now, asking me every morning if it’s Wednesday yet… if it’s ‘the Wednesday yet. You’ve been reciting the days of the weeks using your fingers in an attempt to work out just how many more days you have left to wait.
The time has finally come, it’s here and you’re off on a coach with the whole of Reception. Are you feeling nervous?

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‘CATCH!!’ said Cancer 

Just when things settle down and the future you’ve always dreamed of, craved even, is just millimetres from your outstretched fingertips, life throws one hell of a curve ball. I don’t just mean a little hiccup or minor bump in the road, I’m talking CATCH! as quickly as the word sounds, a forceful chest pass, ball-on-fire type curve ball.

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Zippy Spinners | Fidget Toys For Autism and Anxiety

Sonny suffers terribly with anxiety and having toys to hold helps to keep him calm. He has a strong need to fiddle and chew resulting in nails so bitten they have bled or become infected. I have brought so many different things in a desperate bid to distract him from chewing his fingers; Playdoh, Blutac, Theraputty, twisty toys, bendy toys and stretchy dinosaurs. We even tried various techniques I had learnt on an Autism course, but still Sonny chews his fingers.

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